Genethics

@article{doi105860choice270287,
    title = "Genethics: the clash between the new genetics and human values",
    year = "1989",
    journal = "Choice Reviews Online",
    url = "https://doi.org/10.5860/choice.27-0287",
    doi = "10.5860/choice.27-0287",
    openalex = "W3164070553"
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@book{suzuki1989genethics1,
    author = "Suzuki, D. and Knudtson, P",
    title = "Genethics",
    year = "1989",
    publisher = "The Clash Between the New Genetics and Human Values: Cambridge, Mass., Harvard University Press",
    note = "talkorigins\_source = {true}; raw\_reference = {Suzuki, D., and Knudtson, P., 1989, Genethics: The Clash Between the New Genetics and Human Values: Cambridge, Mass., Harvard University Press.}"
}

@book{doi1015259780520313484,
    author = "Heyd, David",
    title = "Genethics",
    year = "1992",
    url = "https://doi.org/10.1525/9780520313484",
    doi = "10.1525/9780520313484",
    openalex = "W4213110784"
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Unprecedented advances in medicine, genetic engineering and demographic forecasting raise new questions of traditional ethical theories. Do potential people have rights? Can a child that is born handicapped sue the parents? Have people living in the present any moral obligation to future generations and populations, including the obligation to continue the race? This book is a systematic exposition of moral principles that can guide our decisions concerning the existence, number and identity of future people. David Heyd claims that potential people do not have moral status. Reproductive choices must therefore be guided only by the rational desires and values of those who already exist. Heyd's approach resolves many paradoxes in intergenerational justice, while offering a major test case for the profound problems of the limits of ethics and the nature of value.

@article{doi105860choice300210,
    title = "Genethics: moral issues in the creation of people",
    year = "1992",
    journal = "Choice Reviews Online",
    abstract = "Unprecedented advances in medicine, genetic engineering and demographic forecasting raise new questions of traditional ethical theories. Do potential people have rights? Can a child that is born handicapped sue the parents? Have people living in the present any moral obligation to future generations and populations, including the obligation to continue the race? This book is a systematic exposition of moral principles that can guide our decisions concerning the existence, number and identity of future people. David Heyd claims that potential people do not have moral status. Reproductive choices must therefore be guided only by the rational desires and values of those who already exist. Heyd's approach resolves many paradoxes in intergenerational justice, while offering a major test case for the profound problems of the limits of ethics and the nature of value.",
    url = "https://doi.org/10.5860/choice.30-0210",
    doi = "10.5860/choice.30-0210",
    openalex = "W1999078176"
}

@article{doi101038365102b0,
    author = "Macer, Darryl",
    title = {No to "genethics"},
    year = "1993",
    journal = "Nature",
    url = "https://doi.org/10.1038/365102b0",
    doi = "10.1038/365102b0",
    openalex = "W1980909742",
    references = "doi1010160960076094902143, doi101038354347c0, doi101038359770a0, doi101038362491a0, doi101038363203a0, doi101038364097a0, doi101093jmp166587, doi105860choice270287, openalexw420678714"
}

Journal Article Book Reviews Get access Genethics: Moral Issues in the Creation of People. By David Heyd. (Berkeley: Univ. of California Press, 1992. Pp. xiii + 276. Price $45.00 h/b.) Joanna Pasek Joanna Pasek University of Warsaw, and University College London Search for other works by this author on: Oxford Academic Google Scholar The Philosophical Quarterly, Volume 43, Issue 172, July 1993, Pages 385–387, https://doi.org/10.2307/2219908 Published: 01 July 1993

@article{doi1023072219908,
    author = "Pasek, Joanna and Heyd, David",
    title = "Genethics: Moral Issues in the Creation of People.",
    year = "1993",
    journal = "The Philosophical Quarterly",
    abstract = "Journal Article Book Reviews Get access Genethics: Moral Issues in the Creation of People. By David Heyd. (Berkeley: Univ. of California Press, 1992. Pp. xiii + 276. Price $45.00 h/b.) Joanna Pasek Joanna Pasek University of Warsaw, and University College London Search for other works by this author on: Oxford Academic Google Scholar The Philosophical Quarterly, Volume 43, Issue 172, July 1993, Pages 385–387, https://doi.org/10.2307/2219908 Published: 01 July 1993",
    url = "https://doi.org/10.2307/2219908",
    doi = "10.2307/2219908",
    openalex = "W2325923633"
}

@article{doi1023073343049,
    author = "Dusek, R. Valentine and Suzuki, David and Knudtson, Peter",
    title = "Genethics: The Ethics of Engineering Life",
    year = "1993",
    journal = "Journal of Public Health Policy",
    url = "https://doi.org/10.2307/3343049",
    doi = "10.2307/3343049",
    openalex = "W2066517433"
}

@article{doi1010160960076094902143,
    title = "Genethics. The clash between the new genetics and human values",
    year = "1994",
    journal = "The Journal of Steroid Biochemistry and Molecular Biology",
    url = "https://doi.org/10.1016/0960-0760(94)90214-3",
    doi = "10.1016/0960-0760(94)90214-3",
    openalex = "W1498373163"
}

The Icelandic parliament passed legislation authorizing the establishment of a national health sector database which will be sponsored financially by private enterprises through DeCode Genetics Inc. Health related data will be gathered from patients, without their informed consent, from all points of contact with Icelandic public and private health care providers. A centralized data curator will 'non-personalize' the identity of the subjects in a one-way coding system which the government and DeCode Genetics argue overrides the need for informed consent. This legislation is in conflict with the European Data Protection Act, which requires informed consent for the collection of personal data. The law raises many ethical questions regarding the central tenets of informed consent, the power of government, the rights of the human subject, and finally, the responsibility of the clinician balancing commitments of the patient and research.

@article{doi101034j139900041999550404x,
    author = "McInnis, Melvin G.",
    title = "The assent of a nation: genethics and Iceland",
    year = "1999",
    journal = "Clinical Genetics",
    abstract = "The Icelandic parliament passed legislation authorizing the establishment of a national health sector database which will be sponsored financially by private enterprises through DeCode Genetics Inc. Health related data will be gathered from patients, without their informed consent, from all points of contact with Icelandic public and private health care providers. A centralized data curator will 'non-personalize' the identity of the subjects in a one-way coding system which the government and DeCode Genetics argue overrides the need for informed consent. This legislation is in conflict with the European Data Protection Act, which requires informed consent for the collection of personal data. The law raises many ethical questions regarding the central tenets of informed consent, the power of government, the rights of the human subject, and finally, the responsibility of the clinician balancing commitments of the patient and research.",
    url = "https://doi.org/10.1034/j.1399-0004.1999.550404.x",
    doi = "10.1034/j.1399-0004.1999.550404.x",
    openalex = "W2045432390",
    references = "doi101007bf00291407, doi101111j146918091973tb00606x, doi101136bmj318717511, doi101515cclm1998089, doi1073260003481910569891"
}

@article{doi101038nbt11031282,
    author = "Turner, Leigh",
    title = "The tyranny of 'genethics'",
    year = "2003",
    journal = "Nature Biotechnology",
    url = "https://doi.org/10.1038/nbt1103-1282",
    doi = "10.1038/nbt1103-1282",
    openalex = "W1991545254"
}

A companion to genethics, A companion to genethics, کتابخانه دیجیتال و فن آوری اطلاعات دانشگاه امام صادق(ع)

@book{doi101111b97814051202892004x,
    title = "A Companion to Genethics",
    year = "2004",
    booktitle = "Blackwell Publishing Ltd eBooks",
    abstract = "A companion to genethics, A companion to genethics, کتابخانه دیجیتال و فن آوری اطلاعات دانشگاه امام صادق(ع)",
    url = "https://doi.org/10.1111/b.9781405120289.2004.x",
    doi = "10.1111/b.9781405120289.2004.x",
    openalex = "W1480600748"
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“Genethics” is a neologism probably best kept within scare quotes. Yet now that genethics has a Companion —Companion to Genethics, edited by Justine Burley and John Harris, Oxford, Blackwell, 2002, 489 pages, £65—it would appear that we can no longer keep our gloves on when handling the term. Burley and Harris’s enormous collection contains 34 articles, an introduction and an afterword.* Most of the contributions are short (ten to twelve pages), many are new, a few are lifted from earlier work and some are lightly revised versions of earlier pieces. Topics range from the genetics of old age, to the Darwin wars and biotech patenting. The collection’s length and scope make it impossible to review comprehensively. In brief, many of the contributions are excellent. The pieces towards the end of the volume—Sorrell’s on insurance, Munzer’s on patents and property rights, Steiner’s on self ownership, to mention a few—are especially good at bringing serious philosophical analysis to questions of immediate political concern. A high proportion of the essays are devoted to issues of commercialising the genome and genetic research, and these are all good. The guides to further reading that come at the end of each article are also useful, although it is hard not to grin at an astonishing guide at the end of Dawkins’s piece on genetic determinism that includes all and only books by Richard Dawkins. Rather than arbitrarily selecting an article or two for in depth treatment, or saying something intolerably brief about each of the contributions, let me instead use this essay to offer some reflections on the existence of the volume. What, exactly, is genethics, that it requires a companion? The obvious answer to that question is that genethics is the study of the ethical issues that arise out of the science of …

@article{doi101136jme2002002642,
    author = "Lewens, Tim",
    title = "What is genethics?",
    year = "2004",
    journal = "Journal of Medical Ethics",
    abstract = "“Genethics” is a neologism probably best kept within scare quotes. Yet now that genethics has a Companion —Companion to Genethics, edited by Justine Burley and John Harris, Oxford, Blackwell, 2002, 489 pages, £65—it would appear that we can no longer keep our gloves on when handling the term. Burley and Harris’s enormous collection contains 34 articles, an introduction and an afterword.* Most of the contributions are short (ten to twelve pages), many are new, a few are lifted from earlier work and some are lightly revised versions of earlier pieces. Topics range from the genetics of old age, to the Darwin wars and biotech patenting. The collection’s length and scope make it impossible to review comprehensively. In brief, many of the contributions are excellent. The pieces towards the end of the volume—Sorrell’s on insurance, Munzer’s on patents and property rights, Steiner’s on self ownership, to mention a few—are especially good at bringing serious philosophical analysis to questions of immediate political concern. A high proportion of the essays are devoted to issues of commercialising the genome and genetic research, and these are all good. The guides to further reading that come at the end of each article are also useful, although it is hard not to grin at an astonishing guide at the end of Dawkins’s piece on genetic determinism that includes all and only books by Richard Dawkins. Rather than arbitrarily selecting an article or two for in depth treatment, or saying something intolerably brief about each of the contributions, let me instead use this essay to offer some reflections on the existence of the volume. What, exactly, is genethics, that it requires a companion? The obvious answer to that question is that genethics is the study of the ethical issues that arise out of the science of …",
    url = "https://doi.org/10.1136/jme.2002.002642",
    doi = "10.1136/jme.2002.002642",
    openalex = "W2165303844",
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This chapter explores some of the aspects of what is often termed the 'new genetics' as applied to primary care in the British National Healthcare Service (NHS). Genetics, the study of heritability, has promised much over recent years to the personalised care of patients, perhaps more than it has actually delivered. Genomics, a more often used term in current literature and not qualitatively very different to genetics, reflects a more holistic understanding of the influence of the genome on health, science and future promise. The mainstreaming of genomics into the UK NHS is a challenge for policymakers and educationalists which includes primary care. Genomic-wide association studies (GWAS) have been used to assess rare variants in common disease using a case-control, statistical methodology. Reproductive options using genomic information are expected to become increasingly available within the NHS. Predictive genomics that supports prevention can be applied either at a personal or population level or stratified screening for cancer in the future.

@incollection{doi101201978131515548721,
    author = "Rafi, Imran and Spicer, John",
    title = "Genethics and genomics in the community",
    year = "2017",
    abstract = "This chapter explores some of the aspects of what is often termed the 'new genetics' as applied to primary care in the British National Healthcare Service (NHS). Genetics, the study of heritability, has promised much over recent years to the personalised care of patients, perhaps more than it has actually delivered. Genomics, a more often used term in current literature and not qualitatively very different to genetics, reflects a more holistic understanding of the influence of the genome on health, science and future promise. The mainstreaming of genomics into the UK NHS is a challenge for policymakers and educationalists which includes primary care. Genomic-wide association studies (GWAS) have been used to assess rare variants in common disease using a case-control, statistical methodology. Reproductive options using genomic information are expected to become increasingly available within the NHS. Predictive genomics that supports prevention can be applied either at a personal or population level or stratified screening for cancer in the future.",
    url = "https://doi.org/10.1201/9781315155487-21",
    doi = "10.1201/9781315155487-21",
    openalex = "W2766163869",
    references = "doi101136jme2002002642"
}

The successes of the human genome project and genomics research programs portend great potential to improve upon health and enhance life. As scientific advancements continue, bioethicists and policy makers deliberate over the social and ethical implications of genetic and genomic technologies and information (ggT/I). The application of ggT/I to human reproduction raises conceptual and moral questions about being human and the links between offspring, parents, and society. Given ggT/I's ability to significantly affect the biological constitution of humans and future human generations thinking through such issues is fundamental to ethical and policy analysis. By means of a systematic literature review and accompanying content analysis, this paper highlights the dominant ethical concerns raised within recent bioethics discourse over the use of ggT/I for human reproduction. Based on these findings it aso offers a framework through which, and demarcates where, religious perspectives can add value to genethics debates and policy deliberation.

@article{doi1010802050287720191606154,
    author = "Padela, Aasim I. and Aparicio, Mariel Kalkach",
    title = "Genethics and Human Reproduction: Religious Perspectives in the Academic Bioethics Literature",
    year = "2019",
    journal = "The New Bioethics",
    abstract = "The successes of the human genome project and genomics research programs portend great potential to improve upon health and enhance life. As scientific advancements continue, bioethicists and policy makers deliberate over the social and ethical implications of genetic and genomic technologies and information (ggT/I). The application of ggT/I to human reproduction raises conceptual and moral questions about being human and the links between offspring, parents, and society. Given ggT/I's ability to significantly affect the biological constitution of humans and future human generations thinking through such issues is fundamental to ethical and policy analysis. By means of a systematic literature review and accompanying content analysis, this paper highlights the dominant ethical concerns raised within recent bioethics discourse over the use of ggT/I for human reproduction. Based on these findings it aso offers a framework through which, and demarcates where, religious perspectives can add value to genethics debates and policy deliberation.",
    url = "https://doi.org/10.1080/20502877.2019.1606154",
    doi = "10.1080/20502877.2019.1606154",
    openalex = "W2946601087",
    references = "doi101136jme2002002642"
}